Help us build a better understanding of Tourette's in SA.
We believe that lived experiences are one of the most powerful tools for raising awareness, breaking the stigma and building understanding.
Whether you’re living with Tourette Syndrome (TS) or supporting someone who is, your experiences can help others feel seen, supported, and understood.
We’re inviting you to share what life with TS looks and feels like — in your own words, your own way.
By opening up and speaking out, you’re helping us, someone else.
In South Africa, many people with TS feel overlooked or judged, even though TS is more common than most realise.
No one knows why I do what I do
The everyday battles I go through
No one knows the reasons why I shake
People think it's fake
People think it's just a shiver
But for me it's a tremor
It's not just a tic
It's the sound I make click click
People think it's misbehaving
It's just me fighting
A battle of social anxiety
A battle of insecurity
People say you're a weirdo
People sat you can't go
People say you're naughty
I feel uncomfy
People say you're a distraction
People say you're a disruption
But do they ever ask what I'm feeling
I'm just a innocent human being
With an extraordinary disorder
I am a tourettes syndrome warrior
Written by Lauren, a Tourette's Warrior
Send your story, quote, song, poem, drawing, or video clip to info@tourettesa.org
If you’re sharing someone else’s story (like a child, family member, colleague or friend), please get their permission first.
Let’s create a space where real experiences are heard, shared, and honoured with dignity and respect.
If you want to Volunteer for Tourette SA - Apply here
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